Update and TSW Treatment

Gabe started topical steroid withdrawal in mid-February of this year so he is 4 months in. 19113521_10158905728715074_8900016741876609406_n

The bright red skin of the first two months has faded and now it just looks like he has horrible eczema/was in a car crash.  The areas that still look really awful are where we applied steroids the most and longest- wrists, feet, ankles and legs.  His face is flaring though we never really applied steroids and he never had eczema there.

His energy levels are still maybe 35% of what they used to be.  He still spends a lot of time sitting in his favorite spot, the recliner.  He is able to be active and enjoy some quality of life thanks to some supplements we do everyday.

Right now what is really helping him is astaxanthin.  It’s a super potent antioxidant that is reportedly 6,000 times more powerful than vitamin C!!  I carry him out of bed in the morning and after breakfast he chomps up a 12 mg capsule of astaxanthin and within 10 minutes he is feeling 80% better and is able to get up and run around and be a normal kid.  His mouth is perpetually stained orange but it works!!  Astaxanthin is a naturally occurring antioxidant found in red algae (and sea food).  It’s what makes flamingoes pink!

We still give him CBD oil (yes, from marijuana) when his pain and anxiety levels are very high.  We give him 3-4 drops and he holds it in his mouth for 30 seconds before swallowing.  It really helps him and the benefits go behind pain relief.

We also give him detox baths every other day.  Epsom salts, dead sea salts, lavender oil and sometimes a bit of bentonite clay.  He likes the water very hot and even though it usually stings at first, he never wants to get out.  It’s the only place he doesn’t feel pain or itchiness.

Gabe also take probiotics and drinks a lot of kombucha.  He is constantly asking for fruit so we try to stay stocked up.

His sleep is still a nightly struggle.  So 1-2 times a week we give him 10 mg of hydroxinine to help him get some uninterrupted sleep.  We get a break and he gets to sleep through the night without shredding up his skin.

I just ordered liviaone topical probiotic spray and I am pretty excited to try it out.  I really think it will help Gabe heal because of so much of what he’s been through (similar to most people with eczema/TSW) destroy good bacteria on the skin- the steroids, the antibiotics, and bleach baths…. that I really feel he will be able to heal much more quickly with the introduction of healthy bacteria to his skin.

What I’ve tried that hasn’t been successful-

A high grade sodium bicarbonate (baking soda).  There is a lot of buzz about safe soda helping people heal very quickly on the TSW pages.  Problem is, this stuff is super expensive and hard to get.  I tried what seemed to be a similar alternative but without success.  I haven’t ruled out safe soda but it’d be painful to spend $60+ on a small contained of baking soda.

Essential oils.  I’m a huge user of them.  I’ve used them near daily for the past four years.  I just can’t put them on Gabe because his skin is so sensitive that they make him worse.  A couple drops in the tub is ok, applied topically just seems to be too much.

Homeopathy.  Granted we went right in the beginning and we were exhausted and overwhelmed.  We left with like 20 supplements all with complex directions.  Half of them were pills that he couldn’t even swallow.  It was basically a waste of $500.  It probably would have worked better later on in his treatment and if it was more simplistic and doable.

 

Sailing through Flu Season

I have three kids.  Two bring home every germ from their elementary school and the other one is regularly exposed to many other little kids in the daycare at my gym.  Avoiding flu germs isn’t really an option for us.  A couple winters ago I was literally sick off and on like all winter.  It was awful.  Sick-boy

I’ve learned a few tricks since then and I have not been sick once this year (knock on wood) and only my youngest has gotten a touch of the flu.

The biggest ‘trick’ is Vitamin D.  It is gaining popularity and with good reason.  Our bodies manufacture it from sunlight.  But if you live in the frozen dreary north like me (Minnesota, represent) you get basically zero for months on end.  Vit. D is crucial for health in general but if you don’t have enough you will have no immune system.  My levels were abysmally low at my last physical so I take 10,000 iu a day.  I give my kids vitamin D gummies every morning.

My next trick up my sleeve is probiotics.  We take them every day.  They even have tasty, chewable ones now that kids love.  They keep your digestive system happy and give a major boost to your immune system as well.

We also avoid antibacterial anything.  Antibacterial soap leads to super germs…and decreased immunity to them.  Yikes, no thanks.  Hygiene is good but exposure to germs isn’t necessarily a bad thing.  Many experts now site our overly sanitary lives as reasons behind the rise in asthma and allergies.  Our bodies aren’t being exposed to enough germs so they become hyper-active towards them.  A better bet is building up our immune system to be able to handle whatever is thrown at it.

I’m not diving into the controversy that surrounds the flu shot but suffice to say we wouldn’t touch it with a ten foot pole. 🙂

When my kids do still catch some junk I have three other tricks that really help.

For that dry cough that keeps everyone up a night- a spoonful of raw honey is just as helpful as cough syrup.  Plus, you won’t have to force them to take it.

Running my essential oil diffusers with certain oils works almost like magic to suppress coughs so kids (and the parents!) can get a good night sleep.  Oils I have found to be the most helpful are; lavender, frankincense and cedarwood.  They also smell amazing.  If you don’t have a diffuser you can put a few drops of lavender (pretty easily obtained at even a regular grocery store) in a humidifier.  Shut their door at bedtime so they are breathing in moist air with healing properties all night.    lavender

When they wake up with the ‘sick’ look- glazed over eyes, snotty noses, etc.  I will put them in a hot bath with Epsom salts (about two cups) and the essential oils I mentioned (five drops each).  It also does wonders.

I also will rub lavender and frankincense or myrrh (diluted with oil or lotion) onto their chests and massage their lymph nodes to promote drainage and calm an irritated respiratory system.

If you’re just getting started with essential oils just be cautious and always dilute when applying topically.  They are very powerful and effective so kids don’t need much.  For a massage you only need one drop of each oil you are using, diluted in at least a tablespoon of lotion or oil.  You also don’t have to spend a fortune to get good oils.  Aura cacia is widely available, inexpensive and IMO just as good as any other brand.

Also; basic things like eating well, sleeping enough, exercising and managing stress are also biggies.

Here’s to your healthiest flu season yet!