Thank you to all of you who have followed Gabe’s story and progress. We went through a very rough patch this spring. It was very tough, not going to lie. He had staph infections all over his body and his chest was basically an open wound for weeks on end. The staph was so bad that even three different antibiotics didn’t touch it.
We’ve tried some new treatments and he is actually making huge improvements! His chest is 90% healed up and the general infected areas are about 60% better. We’ve been using this antimicrobial spray and it’s really helped a lot. Gabe is getting back a higher quality of life. There’s of course other treatments we are doing so it’s hard to know how much each thing is helping individually, but we are just happy he is getting better.
They are all out of school now so we are adjusting to that! It’s tough for me because I’m big on peace and quiet and my kids are decidedly not.
Before school ended we had Shiloh’s first big IEP (individualized education plan). I had basically all year to sort through coming to terms with the fact that her issues went beyond “quirky” and that she would need special help in school. “Autism presents itself differently in girls. It can go undiagnosed because autistic girls are better able to blend in….” the school psychologist told me gently.
I had many night this past year to process all this as I was getting concerned calls from her teacher. I spent many hours lying awake at night trying to figure out how to fix it, where I went wrong, what had happened… really struggling to come to terms with it. It was really hard but I had all those months to process it before hearing that the team that examined Shiloh had come to the conclusion that she needed extra help at school, a lot of extra help, and that she would receive it under the heading of autism spectrum disorder.
Her teacher from this year included this note on her final reports and she is absolutely right. Whatever Shiloh is up against, we are her parents and we love her. She may be incredibly naughty, mischievous and a hand full (to say the least) but she is also very sweet, joyful, caring.
As a mother the temptation is always to blame yourself when your kid has issues or is struggling. It’s really hard to take yourself off the hook. To forgive yourself for mistakes you made. To realize that it was never going to be a pain free ride because you were bringing children into a very imperfect and pain-riddled world.
Motherhood is something you need to put on the altar. All you can do is your best. You’re not in control. You just have to trust that Jesus is in control, loves your kids like crazy, and has a plan. A good plan.