I ended up deleting my past 4 posts for a couple reasons. My husband didn’t like that I was putting Gabe’s suffering out there for the World to see and also that we want to be able to do what’s best for Gabe without fear of outside forces *ahem* meddling.
My husband and I process things very differently. He is very stoic and private. I’m an open book and sharing (with as many people as possible) makes me feel better. But I respect his wishes and I see his point. We will probably share more when Gabe is well along his healing journey. We do want to raise awareness.
But still, there is good news and darn it, I want to share! Gabe is doing a lot better than he was last week. A lot of the more frightening symptoms have subsided. His skin doesn’t look nearly as red. He still has a lot of healing ahead of him, but we are so encouraged.
His actual eczema is almost non-existent. I still believe God touched him and healed his eczema. We saw enough of an improvement that we were prompted to get him off the steroids- the medicine that was poisoning his body. Now we just need to go through the withdrawals.
Like so often, healing is a journey. It’s a path. There are good days and bad days, ups and downs. But you discover so much along the way. The journey itself becomes sacred in it’s own way.
We have also found an online community of people on this same journey. There is a lot of encouragement and help to be found.
I do believe that God is blessing Gabe with a quick healing. Some things I am doing to help are…
-twice daily soaks in the tub. Sometimes up to an hour. We toss in Epsom salt and essential oils or olive oil and fresh garlic. After twenty minutes or so his pores really open up and I think he has been able to do a lot of detoxing that way. The steroids cause the skin to constrict, and he was on them for so long his skin hasn’t properly detoxed in ages. TMI alert- the bath water takes on the characteristic icky ooze smell so associated with TSW after awhile. It gets pretty gross. I theorize that it’s toxins and trapped sebum in the water.
We’ve also been using a zinc oxide (diaper rash cream) on his really bad spots. For the rest of his body it is Egyptian magic, coconut oil, silver cream, and a drop or two of clove or lavender oil.
He is on antibiotics because he had gotten ‘staphy’ on his arms and torso last week. That looks a lot better and we hope this is the only time he’ll need them.
We met with a new dermatologist today. She was very understanding and admitted she thought Gabe did have a problem related to the steroids, though she stopped just shy of labeling it as “RSS”. She was very supportive of us treating him without steroids. She wrote us a couple perscriptions that may come in handy.
Gabe is handling this all really well. He has been such a trooper. We explained to him what was happening and why, and he has been so brave in handling a process that is very painful and difficult.
I never know how to open (or close) a blog. It always feels awkward.
Ok, so here goes- My name is Sierra and I am a recovering anorexic. Bam.
I’ve been in recovery for a long time. I’ve had babies. Weight has been gained. Weight has been lost. Stretch marks have happened. So has a lot of hard work and personal growth.
I was at a sweet spot, weight wise, for me. Somewhere I can be comfortably, at which my body is happy and the crazy is generally kept at bay.
Well, I’ve been enjoying lots of good food and kicking back breve iced mochas at work and a couple extra pounds have appeared as extra insulation on my tummy and hinny. I stepped on the scale and faced the music and indeed, it wasn’t bloat or my imagination. Sadface.
Instead of going into pyscho- anorexic mode and beating myself up I’m handling it much differently. I stared at my body in the mirror and saw all the things I do like. I (man this sounds so cheesy, but go there with me) affirmed my body. I bit bigger than I want to be, but it’s still my body and I love it.
However, I don’t want those couple extra pounds to gain long term squatter status so I do have a loose plan in place. I’m going to hit my strength training workouts hard. I’m going to cut back on sugar and empty carbs and focus my diet on high quality protein and fats.
I’m not going berserk or punishing my body. I’m approaching it from the standpoint of treating my body as a temple to be treated with care and respect.
The scale will go back to normal and I’m not going to stress about it.
For many of us who have struggled with eating disorders- a lot of it stems from having an intense (obsessive) personality with a heavy dose of perfectionism. I realize now that this can be a good thing. I am probably always going to be obsessing about something. I’m probably always going to have some discontent in my life, striving to be better.
The times in my life that I have been the happiest have been the times I’ve focused all that obsessiveness on the only one worthy of all my devotion- Jesus. So while I strive to do well by my body, my main focus is keeping the focus firmly where it belongs.
I haven’t written in a while. Summer is always a busy and chaotic around here!
I also switched jobs. Now I work part time as a barista at a Target Starbucks. Honestly, the job I’ve wanted for a long time. I love Target and I love Starbucks! I also love getting a discount, yay! My friend snapped this on my first day.
My husband’s brother and his family visited for the first time from Virginia a little over a week ago. It was incredibly special. We had a blast, hanging out and doing tourist-ey things with them.
Tomorrow is a big milestone for me. I’ll be turning 30. I’m kind of sad to leave my 20’s behind, but older = wiser, right?
I watched the movie ‘Miracles from Heaven’ a few nights ago. At about 20 minutes in I started crying and couldn’t stop. It just touched so many nerves for me. The child in pain, the mom losing hope- it’s definitely been where I’ve been at for a long time.
My 7 year old son, Gabriel, has had severe eczema for years now. It has been so tough for him. Lately we haven’t been letting him play outside because he reacts so strongly to the allergens. His eyes are always bright red lately. There’s times where he can’t sleep because the itching or pain is so intense. And all of this with daily anti-histamines and steroids and expensive lotions. It feels like a never ending nightmare.
Watching him suffer, day after day, had really hardened my heart towards God. Gabe had asked me, “why did God let me get eczema?” and I’m at a loss for words.
No, it isn’t as serious as what the Mother was facing in the Miracles movie. But his condition has been devastating for him. To the point that when we went to meet his cousins (in 90 degree heat) he cried because he wanted to wear a sweatshirt to cover up all the redness, bumps, and open sores. He is also limited in his daily ability to just be a kid because the itching and allergies make him so miserable.
We’re still going through it. There’s no end in site.
I think most (if not all) Christians face a make or break trial. Something devastatingly hard, something that never seems to end, something that hits home. Those times test what we know to be true.
God was speaking to me through that movie. I realized I’ve been ‘under’ the trial and the devil was running roughshod through my life. In my pain and sadness I was distancing myself from God, my power source, and leaving myself very weak and vulnerable to attacks from the enemy.
“Now if we are children, we are heirs- heirs of God and co-heirs with Christ, if indeed we share in his sufferings in order that we may also share in his glory.” Romans 8:17
I have resolved to hold tighter onto Christ through this. I believe in miracles. Especially the quiet ones, where God uses tough circumstances to do an incredible work in us.
This past year, going through some stuff; I allowed my worship to be silenced.
I was worshipping God and was filled with joy and his Holy Spirit this week. I realized for much of the past year I had been silenced by worry, doubt, fear, etc. And my joy and passion for God had really waned.
If prayer and bible study are our daily bread than worship is the olive oil. Literally- oil in the Bible signifies anointing and the Holy Spirit.
I know for me that nothing connects me to God more than heartfelt worship. I feel him work in my heart, he reveals things to me, I find my purpose as one created to worship God.
The enemy wants to silence our worship because it is so powerful. The joy of the Lord is our strength and we never tap into that more than when we enter into worship.
When we exalt God our problems are minimized. We get a proper perspective and are able to enter into his peace, even if our circumstances don’t change.
I want to make this year a year of purposeful worship. I want to make my home a sanctuary. I want my children to grow up in the presence of the Lord. I want my heart to be ruled by his peace and his presence.
“Worthy are you, our Lord and God, to receive glory and honor and power, for you created all things, and by your will they existed and were created.” Revelation 4:11
I guess I should specify that I am not a medical professional, just someone who has spent countless hours looking for answers to my own health problems. I waded through a lot of scams and wackiness and found helpful tidbits here and there until I pieced them together into a more complete picture. I have tried a gazillion different supplements. I am basically a guinea pig. 🙂
I wish I had found very clear answers early on, without a sales pitch. I also realize that everybody is different but basic health advice applies to everyone.
I personally have a strong family history of auto-immune disease. My paternal grandma died of cancer and lupus. Many of my aunts and uncles from that side have auto-immune issues. My sister has celiac’s disease and lupus.
When I started feeling awful in my early 20’s I had no idea why. With a stressful pregnancy at 22 I believe my celiacs got into full swing. But it started before that. As a young child I had recurrent ear infections and was on dose after dose of antibiotics. Antibiotics, especially when given heavily to a young child, greatly damage that gut bacteria which in turn affects all areas of health and development. I remember getting a lot of stomach aches. I was rail thin. I had a major sweet tooth (candida, anyone?) and started dealing with some anxiety and depression early on.
So it took many years of searching to find out why I felt so awful all the time. I thought I might have chronic fatigue syndrome because I felt bone-crushing fatigue almost every day. On top of that I had insomnia.
Let me preface to say that all foods are inflammatory to some degree. Even breathing causes aging through oxidation! But some foods are more inflammatory than others. If you have a weakened gut through family history, stress, antibiotics, etc. you are more likely to develop digestion problems like leaky gut or full blown celiacs. If you are eating inflammatory foods with a weakened gut you are going to crash and burn, health wise.
With a compromised gut wall; certain proteins from food can leach through the gut lining and cause auto-immune problems when your immune system decides that say, gluten, is a threat to be attacked. Then your own immune system is attacking your own gut. Obviously problematic!
This was going on with me for years. I eventually realized that it wasn’t just gluten but also soy lecithin, carrageenan, preservatives, and nitrates that were causing my gut inflammation and misery. All grains also tend to be inflammatory to people who already have damaged guts. So out with the gluten free pasta and bread. Gut inflammation caused my nutritional deficiencies and exhaustion. I felt like an old lady and much of my hair fell out.
I found out through some blood testing that I was anemic and deficient in vitamin D. I wasn’t making vitamin D through sunlight. It must be a lupus thing- a lot of sunlight just caused more inflammation and exhaustion.
There are a lot of good blogs out there with good info but the lifestyle they advocate is so extreme it can be overwhelming. Like- I need to live on organic free-range bone broth and kale? Just shoot me now!
I don’t think most people need such an extreme lifestyle. Just some tweaks here and there. I am on a pretty restricted diet cause I have to or I will feel awful. But I am seeing big improvements in my gut and general health and hopefully will be able to successfully incorporate more foods.
Supplements that really helped me are turmeric (great anti-inflammatory), probiotics, iron, and of course vitamin D. I was taking 2,000 IU’s a day and that wasn’t making a dent in my deficiency. I’ve upped it to 10,000 IU’s and that has made a big difference.
People with auto-immune issues tend to be Vitamin D deficient. Whether the deficiency causes the problem or the problem drains the body’s resources, I don’t know. But in either cases getting those levels up is crucial.
Symptoms are clues to an underlying problem. I tried to treat my hair loss for years with topical stuff with limited success. Addressing my gut health and vitamin deficiencies made my hair finally stop falling out.
Limiting caffeine is also helpful. It is a vicious cycle when you are so exhausted you become more and more caffeine dependent and that caffeine disrupts your sleep at night and you become more tired and caffeine dependent. At one point I was drinking up to five cups of coffee a day. Not healthy! Now I try to stick to two cups of half-caff coffee in the morning. I sleep so much better. Too much caffeine also messes up your hormones. My cycle gets messed up when I have too much caffeine. (Hello psycho P.M.S!)
Most of us are deficient in magnesium too. I take magnesium citrate every night before bed for good sleep.
I also most shop the parameter of the grocery store- fresh produce, meat and dairy. I make most things from scratch to avoid icky ingredients. It takes awhile to adapt but every thing tastes so much better. You get used to good homemade food and everything else is subpar. I do make bone broth and make some crazy good soups that are also super healthy. I stock up on staples like kerrygold butter, organic cream, leafy greens, regular old chicken breasts, and of course coconut oil at Costco. We probably spend less on groceries than an average family of five.
I don’t always buy organic because it can be ridiculously expensive. But I do when I find deals or comparable pricing. We usually don’t eat canned food either because it is super high in BPA and is not as nutritious. Plus, canned food just tastes icky.
Also, exercising is very important too. Especially strength training for bone health. My ankles used to crack whenever I tried to run and feel like they were giving out on me. Yikes! I’ve been building up my strength with weights and plyometrics and I feel strong and healthy, and no more cracking ankles. Heavy impacts and weight loads don’t just affect your muscles but your bones as well. You can build up bone strength, no matter your age. Weight lifting is also great for metabolism and even brain health!
I really feel better than I have in years. I hope that others who are in the same hard place with their health that I was find hope in that you can feel better, that there is hope.
I have three kids. Two bring home every germ from their elementary school and the other one is regularly exposed to many other little kids in the daycare at my gym. Avoiding flu germs isn’t really an option for us. A couple winters ago I was literally sick off and on like all winter. It was awful.
I’ve learned a few tricks since then and I have not been sick once this year (knock on wood) and only my youngest has gotten a touch of the flu.
The biggest ‘trick’ is Vitamin D. It is gaining popularity and with good reason. Our bodies manufacture it from sunlight. But if you live in the frozen dreary north like me (Minnesota, represent) you get basically zero for months on end. Vit. D is crucial for health in general but if you don’t have enough you will have no immune system. My levels were abysmally low at my last physical so I take 10,000 iu a day. I give my kids vitamin D gummies every morning.
My next trick up my sleeve is probiotics. We take them every day. They even have tasty, chewable ones now that kids love. They keep your digestive system happy and give a major boost to your immune system as well.
We also avoid antibacterial anything. Antibacterial soap leads to super germs…and decreased immunity to them. Yikes, no thanks. Hygiene is good but exposure to germs isn’t necessarily a bad thing. Many experts now site our overly sanitary lives as reasons behind the rise in asthma and allergies. Our bodies aren’t being exposed to enough germs so they become hyper-active towards them. A better bet is building up our immune system to be able to handle whatever is thrown at it.
I’m not diving into the controversy that surrounds the flu shot but suffice to say we wouldn’t touch it with a ten foot pole. 🙂
When my kids do still catch some junk I have three other tricks that really help.
For that dry cough that keeps everyone up a night- a spoonful of raw honey is just as helpful as cough syrup. Plus, you won’t have to force them to take it.
Running my essential oil diffusers with certain oils works almost like magic to suppress coughs so kids (and the parents!) can get a good night sleep. Oils I have found to be the most helpful are; lavender, frankincense and cedarwood. They also smell amazing. If you don’t have a diffuser you can put a few drops of lavender (pretty easily obtained at even a regular grocery store) in a humidifier. Shut their door at bedtime so they are breathing in moist air with healing properties all night.
When they wake up with the ‘sick’ look- glazed over eyes, snotty noses, etc. I will put them in a hot bath with Epsom salts (about two cups) and the essential oils I mentioned (five drops each). It also does wonders.
I also will rub lavender and frankincense or myrrh (diluted with oil or lotion) onto their chests and massage their lymph nodes to promote drainage and calm an irritated respiratory system.
If you’re just getting started with essential oils just be cautious and always dilute when applying topically. They are very powerful and effective so kids don’t need much. For a massage you only need one drop of each oil you are using, diluted in at least a tablespoon of lotion or oil. You also don’t have to spend a fortune to get good oils. Aura cacia is widely available, inexpensive and IMO just as good as any other brand.
Also; basic things like eating well, sleeping enough, exercising and managing stress are also biggies.
So I did go in on Tuesday to see where my thyroid was at and to test for the presence of anti-nuclear anti-bodies (which indicates the potential presence of an auto-immune disease). I had my first strange experience of having a doctor that is (probably!) younger than me. I am 29 but she looked about 25!
It is also strange that now we can see test results online with only google to help us figure out what it means. My ANA test was positive. I haven’t heard back from the Doctor though. So I am in the limbo period. I’ll probably need more tests to figure out exactly what is up.
Today I am feeling just exhausted. I am pretty bummed because this has affected my quality of life so much for most of my 20’s. Summing up much of the last decade in my life I would use one word- tired. And with three kids I can’t exactly nap or sleep in.
My little guy Gabe is going through the ringer with his eczema. He’s been having trouble sleeping every night and keeping us up too. I let him stay home on Tuesday because he had been up much of the night and scratched himself raw.
So we are at a real low point. It’s been pretty brutal. It kills us to see him suffering day after day. He is going to see a specialist next week and hopefully we’ll get some answers/help with this.
In times like this I am grateful though for my husband. He is such a good dad and a loving partner. Having that support through tough times is everything.
We are trying to see glimmers of hope through this. It’s been tough though. Not gonna lie. We get really frustrated that God hasn’t yet answered our prayers for Gabe. We’ve started wrapping him up in seran-wrap and packing tape at night so he doesn’t scratch all his skin off at night! Almost funny, like a little plastic wrap mummy.
I don’t know for sure if I have lupus yet. Obviously, there is something auto-immune going on with me- causing the fatigue and hair loss. Hopefully I’ll have more answers soon.
So it is what it is. We could definitely use prayers, especially for Gabe.