Face like Flint

I just got kicked out of an eczema support group on Facebook.

I was acting as sort of an awareness raising vigilante for the dangers and prevalence of topical steroid addiction amongst those who suffer with eczema.

Like, “LOOK!  Guys I have the answer.  You can get completely better!!  Your steroids have been causing your worsening condition all along.  Now you just need to go through this hellish withdrawal!!”

Obviously I wasn’t met with much enthusiasm.  The people who administrate the group are familiar with TSW and for whatever reason, have decided against it.  Not only that, but because of the suffering associated with it, they label it as “dangerous” and “misguided” and the people, like myself, who try to sound the alarm, are promptly booted from the group.

My reasons for wanting to warn people is simply that I wish someone had warned us before our level of dependence on steroids got as bad as it did.  We could have avoided so much pain and suffering for our son.

But the road is a hard one, no doubt.  And many try for a time, before going back to steroids and concluding that TSW doesn’t work.

I’ve gotten some unexpected feedback sharing my blog within my TSW support group.  People commending my husband and I for doing a good job.  It is great, in a sense, mostly because it’s vindication.  When we entered into this, it was going against medical advice.  It was going it alone.  It was entering into some pretty bleak and abject suffering.  We felt very defensive about our decision because while we knew we were doing the right thing, we felt a lot of heat over it.

But at this point it is finally paying off.  My son is getting better.  There is a spark of vitality and health that strengthens every single day.

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He was thrilled to get a McChicken before school~

In our case we found the answer to our prayers, to our searching, but it meant pressing through a whole lot of pain and difficulty.  “As the time approached for him to be taken up to heaven, Jesus resolutely set out for Jerusalem.” Luke 9:51  Another version says, “He set his face like flint.”  Jesus knew full well what he was getting into and he pressed into it.  He was resolute.  Because he knew the joy set before him.  He knew the end game.

 

My husband and I never wavered, not once.  We knew that God had led us to this point.  We knew Gabe had to go through this withdrawal.  We were of one mind, and there is so much power in that.  Gabe, young as he is, he understood and was 100% on board too.

We’ve gone through a pretty extreme trial, but, we all go through stuff.  We all deal with pain.  That’s why we need hope.  We need to know the end game.  We need to know our Shepherd.

Often, the only way out is through.  We have to be resolute.

“Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off every encumbrance and the sin that so easily entangles, and let us run with endurance the race set out for us.

Let us fix our eyes on Jesus, the pioneer and perfecter of our faith, who for the joy set before Him endured the cross, scorning its shame, and sat down at the right hand of the throne of God.” Hebrews 12:2-3

I know there are those who don’t get their healing.  At least, not here on this earth.  But we know the end game.  We know in whom we have believed.  We know this life isn’t the “be all, end all”.  It’s like a cosmic waiting room we bide our time in until we can get to the real deal.  And hardships help to wake us up to the eternal consequences and weightiness of how we live our lives here while we wait for the children of God to be revealed.” Romans 8:19

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Beginners Guide to TSW

I’m writing this guide to help the many who are starting their TSW journeys.  I’m writing this because you won’t get much help from the medical community or even alternative medicine practitioners.  I’m writing this purely to help.  I am not affiliated with any of the products I recommend.

I’ve read blogs and watched videos from people who healed quickly and are giving out advice but they had only a short period of T.S. (topical steroid) usage.  Well, no wonder, right?  I’ll give a short back story so you can know that we have dealt with severe TSW.

My son used hydrocortisone for a couple years and then fluocinonide for about a year.  During this time his health deteriorated.  He developed asthma and had multiple rounds of pneumonia.  He always had dark circles around his eyes.  When we asked his dermatologist about it she prescribed protopic to rub onto his eyelids. (insert forehead slap here!)

After a month on oral prednisone in an attempt to clear up very serious pneumonia, Gabe developed full scale red skin syndrome.  At that point he was getting red rashes on his torso and they would go away if we applied the fluocinonide.  Right before we discovered topical steroid addiction we were applying the super potent steroids AND protopic and sealing it up with plastic wrap in a desperate attempt to get his skin under control.

Gabe was exposed to a lot of steroids and went through an extreme withdrawal. When we discovered TSW (or RSS or TSA) we knew we had found the answer but had no idea what to expect or how bad it’d get.

In these two pics you can see how he looked in the first week.  His skin turned bright red, obviously.  You can see on his neck in the second pic how bad the oozing was.  It was running off like water.  I’d go to pick him up and his clothes would be practically drenched.

This is normal TSW and happens because the steroids work by shutting down the blood vessels close to the skin.  It calms the bodies own immune response and seemingly fixes the problem.  But when you’ve used for a long time and you suddenly stop, those blood vessels flood with nitric oxide.  You get bright red, angry, hot, oozing skin. Though people of color never get red skin, their skin gets several shades darker.

At this point we brought him back to the dermatologist.  It was a mistake.  Don’t expect much help from your derm at all.  They wanted to hospitalize him and slather him head to toe in steroids with a steroid drip to treat his “infected eczema”.  We stormed out.

We were able to find a much more sympathetic dermatologist who wrote us a school note for why Gabe couldn’t go to school.  Even she wouldn’t come out and admit it was TSW.  She wrote it as “severe eczema”.

You need to find doctors you can work with but don’t expect any miraculous breakthroughs or much help.  The dermatologists do largely know about TSW but either they don’t care or they hide behind a thick wall of denial.  They aren’t about to completely overhaul the way they practice and admit that their care has made so many people not only worse but desperately ill.

If you’re a parent of a child going through TSW it’s important that you establish that you are seeking medical attention for your child.  Make it clear that you aren’t refusing treatment, just steroids.  Ask that steroids be listed as an allergy on their chart.  Call their school and do everything you can to work with them.  You need to cover your butt because there are nutjobs who troll support groups and report parents to CPS.  You may even face a lack of understanding in your own family.  You need to have this proof that you are getting your child the help they need medically because the last thing you need is CPS opening an investigation.

Speaking of nutjobs…avoid the Dr. Aron people.  Not all of them are like this but there are a select rabid few who troll the recovery groups and try to deter people from the true path to healing.  The Dr. Aron method is not magical by any means.  It’s a quick fix and it doesn’t address the underlying problem- the addiction to the steroids themselves!  Many of them are stuck applying a concoction of steroid and antibiotic lotion 5-6 times a day.

When you do see your doctor you can ask for prescriptions to help you through this TSW hell.  Hydroxyzine (atarax) can be helpful to get some actual sleep.  We use it once in awhile because daily use was making our son incredibly irritable and depressed.  Like most drugs, it can be helpful but it has side effects.  We have a bottle of tramadol as well, for days when the pain is just too much.  Many use gapapentin or lyrica for nerve pain.  It is also helpful to have a script on hand for antibiotics in case of a sudden staph infection.

Depending on your usage and history you may need to take an extended leave or even quit your job.  My son required so much care that I quit my part time job to take care of him.  If you’re single, you may need to move back home.  Do whatever you can to enlist help and support to help you get through this.  My son missed months of school.  We did a homebound program where a teacher from his school came out and spent an hour a day with him so he wouldn’t fall too far behind.  It was necessary because he basically spent months in this chair unable to walk. 20170518_221523

You’re going to be utterly exhausted and afflicted with terrible insomnia.  The T.S. didn’t just affect your skin.  They were your supply of cortisol and adrenaline so your body simply stopped making it’s own.  It’ll bounce back but it’ll take many months.  In the mean time you’ll probably watch every episode of every show on Netflix in the wee hours of the morning.

Just about everything you experience is “normal”  Swollen lymph nodes, chills, edema, crust, ooze…all normal.  My son swelled up and was constipated for the first time in his life the first week of withdrawal.

What you need to familiarize yourself with is signs of infection.  Google “impetigo” and “eczema herpeticum” and get very familiar with how it presents so you can catch it early if (or when) it happens.

Virtually all TSW people have a major staph (staphylococcus) overgrowth problem.  The steroids actually enable the staph to grow out of control and further colonize your skin.  The best bet in beating it is building up your immune system, not tearing it down.  Steroids are a quick band aid, and actually make the problem so much worse in the end.  Same with immunosuppressants.  You need to get healthy so you can actually heal and stop covering up the problem.  Many people do bleach baths (a 1/4 to 1/2 cup regular bleach in full tub) to reduce the staph on their skin.  We also used liviaone probiotic spray off of amazon.  The good germs help coral the bad ones.  I wash my hands carefully after treating Gabe or I get staph bumps.  I wipe down commonly touched surfaces with Lysol wipes and I clean his tub with bleach pretty frequently.  Nothing else kills staph.  Believe me I’ve gotten infections to prove it.

Regarding immunosuppresants or “immunos” this option should be an absolute last resort.  I’ve read many blogs of people who used immunos and it made their symptoms much better until they stop using them and they are virtually back to square one and need to start withdrawing all over again.

20170705_114604The absolute best thing you can do is support your health, not undermine it.  Especially since your immune function is already very compromised.  At one point my son contracted the measles from being around a toddler who had recently had her MMR shot.  That was four days of sheer hell.  So be aware that you are immuno-compromised and that risk is there.  For heavens sake don’t get any vaccinations.

After you go through the bright red skin phase you’ll go through different phases.  It’s helpful to take pictures so you can document your progress.  I took pictures of my son at his worst.  For evidence in case we ever file a lawsuit for the harm inflicted on him by negligent doctors and also to encourage us that he was making progress.

At his worst his legs were actually purple.  He looked like a victim of radiation poisoning.  20170707_204127The areas that were hit the worst were the ones that had received the most T.S. over the years.  But it really affected his entire body.  From the swelling and bacterial infections he lost virtually every single finger and toe nail.  In this picture you can see that chunks of skin were rubbing off while the skin underneath was still too raw.

In TSW it’s like you’re a snake and you shed your skin every single day.  There’s just going to be skin everywhere.  We still (8 months in) vacuum nearly every day.  I wash his blankets every day.

We use $5 fleece blankets from Walmart.  He sleeps on top of one with another one covering him.  Then in the morning I can easily roll them up (to contain the crust) and toss it in the washer.  It’s so much easier than stripping off sheets and all his bedding every day.

Speaking of laundry, switching to a free and clear detergent is helpful.  I wash my sons clothes and blankets in a natural powdered detergent and use white vinegar as a rinsing aid instead of fabric softener.  Vinegar helps deodorize and soften fabric, as well as getting all the soap residue out.

“TSWers” argue big time about the importance of diet and even what diet is best.  My thought is that the body needs the building blocks of a nourishing diet to properly heal.  This is not a time to go on a ridiculous diet.  You need extra protein.  You need a lot of healthy fat.  Avocados, grass-fed butter, bone broth, fish, nuts, etc. you need a balanced diet with the amino acids from complete sources of protein.  You also need antioxidants from fresh produce.

Because your adrenal glands are already completely slaughtered from the steroids you want to avoid further stressing them with sugar, alcohol and caffeine.  I’m willing to bet virtually all TSW people also have candida overgrowth from antibiotics and a weakened immune system.  The candida is a nasty yeast that lives on and in you and it feeds on sugar.  We noticed that our son got instantly itchy after eating sweet treats.  We cut way back and he felt much better.  We noticed his anxiety levels went down as well. Sugar feeds the yeast and it also depresses your immune system.  So it’s extremely wise to limit it, even in the form of juice and fruit if you believe you have candida overgrowth.

Probiotics can also be very helpful in healing your gut and aiding in your healing.  Other supplements we have found very helpful with Gabe have been astaxanthin (a super antioxidant), powdered super greens, vitamin D3, and CBD oil.

I see a lot of questions about CBD.  CBD is cannabinoid oil and it’s the medicinal part of the marijuana plant.  It won’t get you “high” and it’s legal in most states.  It helps with inflammation, anxiety, pain and insomnia.  It was extremely helpful in the first few months for us.  Gabe would be exhausted and in so much pain until I gave him a few drops of his CBD and he would be able to get a few hours of peaceful sleep in.  Or he’d be able to get up and move around a bit.  I ordered mine here https://www.anandaapothecary.com/shop/cbd-formulas/

We’ve just lately found Maxasorb BioActive Vitamin B12 Cream to be very helpful.  I apply a few pumps all over his body after his bath and he perks right up.  His skin is also less red since we started using it.  It has also never stung or irritated his skin.

Just this week we tried alkaline water for the first time.  I heard about it on the ITSAN support group and decided to try it.  It’s already made a world of difference for him.  He has much more energy and much less itching.  I highly recommend it.  I found our first bottle at Target and ordered a case of Essentia brand water off of amazon.

We have also done warm baths with either dead sea or Epsom salt nearly every day.  We do salt because it cleans the wounds and is very healing for stressed adrenal glands.  One trick we’ve found to get around the water stinging is applying cocoa butter right before he gets in.  When the skin is very dry even water stings.  The cocoa butter acts as a buffer until the skin can get used to the water.  The bath was great because for Gabe it was, for a long time, the only escape from feeling pain and itchiness.

I like cocoa butter as a moisturizer because it is very gentle.  It is a saturated fat so it is unlikely to go rancid.  It also has a warm, chocolately scent that can be useful in covering up that oozey smell.  I order my cocoa butter off of amazon.  It comes in a big brick.  I put in in a glass container and melt it as needed with a hair dryer in my bathroom.  It only takes a minute to melt what I need.

We’ve spent lots of money on eczema creams and potions and it’s pretty much a waste.  We used a lot of Vaseline and aquaphor early on but realized it was making him itchier and drier.

Your skin will go through a lot of changes and you need to find what works in each stage of TSW.  Generally, using products with less ingredients is better.  You can even rub something as simple as olive oil on your skin.  Whatever you use it can be helpful to add essential oils, which can act as a natural antiseptic with healing properties.  Thyme, lavender, tea tree, frankincense, and clove are all very good.  I buy my essential oils from plant therapy or ananda apothecary.  You just need to make sure that they are properly diluted. When my son is very upset I put a few drops of lavender in his bath, mixed with his bath salt.  I also put a drop of aura cacias “pillow potion” on his pillow at night.  They don’t work miracles but they do help.

Early on we also used a lot of zinc cream.  Zinc is very protective and can offer some relief to very raw skin.  We liked sudocrem (bought from Walmart online) but you can grab a good diaper rash cream and it’ll do the same thing.

Some people advocate for moisture withdrawal.  We haven’t tried it with our son, because it would be too painful and difficult.  It seems to be helpful in the later stages in teaching your skin to make it’s own oils again.

Getting through those first months is so tough but you can take comfort in knowing that so many warriors have gone before you.  At our low points I probably read the success stories on https://itsan.org/rss-images/ ten times.  My son and I also enjoyed Briana Banos funny and educational videos on youtube.

The best advice is to take it one day at a time.  No one knows how long your healing process will take but you can do so much to make it better and shorter!

At this point my son is getting more and more clear.  He is back at school for half days.  He is starting to get back to normal life.  He’s gone from this terrible “before” to this “after” in just six months. 18010182_10158675908895074_4895123062797969444_ngabebabeHe still has a way to go but we know he is well on his way to being truly healed…and tough as it is, you’re on a journey to being completely healed as well.  Thank you for reading and God bless you.

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Temple of the Holy Spirit

One focus of this blog is supposed to be on health.  I haven’t really addressed that in awhile partly because it has been so back-burnered in my life.

Lupus and other auto-immune disorders run in my family.  My paternal Grandma, Margaret Terrell, had parents that fled the hardships of the potato famine in Ireland.  Then she went through extreme hardship enduring the Great Depression as a girl.  She had 14 children and succumbed to lupus and cancer at the relatively young age of 64.

All of my aunts have auto-immune issues.  My older sister has lupus and R.A.  My aunt has done a lot of research and believes that the hardships endured in our family caused a genetic mutation and predisposition to auto-immune disease.

A few years back I was feeling awful and had a lupus test done.  The results showed elevated nuclear antibody activity, evidence my body was attacking itself, but not high enough to be in the “lupus” category.

So this thing is just simmering away in my DNA.  I feel so strongly that I have a responsibility in determining how this is going to play out.  I’ve made many lifestyle changes in order to feel better.  When I take care of myself and minimize inflammation in my body by avoiding gluten, carrageenan, soy lecithin, and preservatives, I feel really good.

But in my role as a caregiver there has been much stress and exhaustion.  My son often can’t sleep at night so I am up frequently with him.

I’ve gone back to drinking way too much coffee and eating stuff I shouldn’t.  Snickers and Reeses cups have become a major staple in my daily diet.

And I feel flipping awful.

The past few days I’ve been feeling like an extra from the Walking Dead, and looking like one.  I’ve had an autoimmune-feverish feeling.  Not good.  a_4x

I was lying in bed a couple night ago just stressing about all of this.  Thinking I needed some huge game plan to save myself from this awful state I’ve gotten into.  But the Holy Spirit spoke to me about just going back to common sense things to take care of myself.  Yes, I need the Holy Spirit because adulting is hard and common sense at times eludes me.

I don’t need 5 cups of coffee a day.  I need more nourishing meals and less Halloween candy.  I need to rest.  Just basic stuff.  I feel 100% that if I treat my body well I will pull out of this.

I also give myself grace because it isn’t all “my fault”.  Being a caretaker is just tough.  When you’re exhausted and stressed it makes more sense (in your fatigued mind) to wash down a snickers bar with espresso so you can power through the day than taking the time to eat a proper meal.

And you can do that occasionally but when it becomes a daily lifestyle, it’s only a matter of time before the crash and burn becomes inevitable.

Our bodies are amazing instruments that God has given us.  We need to treat them accordingly and honor them in a way that is befitting the living, breathing temple of the Holy Spirit.

“Do you not know that your body is a temple of the Holy Spirit who is in you, whom you have received from God? You are not your own; you were bought at a price. Therefore honor God with your bodies.” Cor. 6:19-20

We all face hard things.  Sometimes it’s written in your DNA and you feel like it’s a life sentence.  But the human body is truly an amazing creation.  We are wired to heal.  Whatever you’re facing, don’t give up.  Take care of yourself.  Do your best and God will honor those efforts.

 

Conviction vs. Condemnation

Last Sunday I had a really great day.  My daughter and I met up with my mom and her husband at the Mall of America.  I have so much fun with them.  We walk around and giggle and act silly.

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Shiloh had my mom in a death grip!

We bought chocolate at Lindt and had fresh guacamole and chips.  It was just a really great day and a much needed break from the daily grind.

As I lay in bed that night thinking about the day, I started feeling guilty.  Why?  No good reason.  I just felt almost like the day had been so fun and easy that I must be missing something.

As I lay there thinking, I felt like the Holy Spirit reminded me that God is the source of every good and perfect gift.  I shouldn’t feel some weird, misplaced guilt over having a light-hearted day.  “Command those who are rich in this present world not to be arrogant nor to put their hope in wealth, which is so uncertain, but to put their hope in God, who richly provides us with everything for our enjoyment.” 1 Timothy 6:17

Yes we should be fighting the good fight and fight against the desires of the flesh.  But it’s ok to laugh and have fun and enjoy the gifts that God richly provides.

I was folding laundry the other night when condemnation struck again.  I dump all my family’s laundry on my bed and sort and fold my way through the giant pile every night.  For whatever reason my mind always wanders to dumb things I’ve said and done in the past.  I was going over those same stupid mistakes and feeling the familiar waves of condemnation rolling over me and weighing down on me.  So much so that I just layed my head, somewhat pathetically, on my bed and buried my face in the clean laundry.

The voice of the Holy Spirit interrupted this little condemnation sesh with an abrupt, “You could have joy right now.”  Like, HELLO, you need to reclaim this time.  Stop falling into the old trash heap and letting the enemy beat you down.

The condemnation I was feeling was not from God at all.

Another instance happened today.  I had responded a bit snippily to a woman on my TSW support page.  It was a post from a woman who was only a week or so into topical steroid withdrawal and wailing about “when will this end?!?!?!  Give me at time frame and it better be days!!!”  I was incredulous and irritated because most of the people in the group have been suffering horribly for a long time and yet maintain a positive attitude.  Then she promptly responded even more snippity-ish (yes, I’m making up a word!) and back and forth it went.

Later that day when I was singing worship songs when I got the feeling I needed to apologize to this woman.  “Hmm….  That’s an interesting thought.  noooLet me file that away for later.”  Then later then day when I sat down to read my Bible and pray, I closed my eyes and BAM! “You need to apologize to her.”

I knew it was conviction from the Holy Spirit.

Did I want to apologize?  No.  Is it something God would want me to do?- Humble myself and be gracious..?  Yes.

I sucked it up and wrote her a quick message to apologize for being harsh and that I wished her well on her TSW journey.  I let it go and went back to praying.

When God convicts it is not to bury us alive in feelings of shame and worthlessness.  It is always quick and to the point and it comes with a solution to make it right.  In this case I just needed to apologize for my part.  Because that’s what I responsible for.

The good news is that when we do respond quickly to conviction it brings us closer to the heart of God.  Conversely, when we recieve the spirit of condemnation from the enemy, it does absolutely nothing to help us become more Christ-like.

We all need to be aware of the thought patterns we have in our lives that may be building us up or bringing us down.

       “For as he thinks within himself, so he is.”

Proverbs 23:7

A Midsummers Night Blog

This is just going to be kind of a random blog about Gabe’s progress and life in general.

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Lindt chocolate ball,  mmm

Gabe is now 5 months into topical steroid withdrawal.  I know I left off with sharing what rough shape he was in a couple weeks ago (with what may or may not have been measles…) without any real update.  He did get better.  Now he is back to his usual TSW self.

His skin looks much better than in the early days (or even two weeks ago with mystery illness!) but his energy levels are still very low.  I imagine long term topical steroid use caused major adrenal gland suppression and it is just taking a long time for them to “re-boot”.

At this point he is still sitting in his favorite spot, the recliner, for most of the day.  He doesn’t want to go anywhere.  I can’t blame him.  Minnesota summers are hot and very humid and it aggravates his condition horribly.  Just 5-10 minutes outside will lead to a 20 minutes “itchfest” where he’ll scratch till he is bleeding and in pain.

One of the hardest things is feeling guilty because so much of my time goes to taking care of Gabe.  My other two children just aren’t getting as much attention.  We could have picked a better time to start!  I feel like we are all missing out on summer fun, seeing as how we spend most of our time indoors.

I know next summer will be different, will be better.

In the mean time I can’t wait for school to start.  I know moms aren’t supposed to say that, but it’s true.  I am truly an introvert, and I need a good deal of peace and quiet every day for a sense of emotional well-being.  Being mostly stuck inside all day with three loud children is very draining!  That plus the fact that many nights Gabe is literally up till midnight and then up again at 7 am, needing care.

As someone who is naturally prone to depression, I feel like I have been handling this all really well.  My husband is my support system for sure.  Plus my sweet dog (the subject of my last blog post) he is always there with his comforting presence.  And of course, God (!!!).

There has been quite a lot of pain along the way.  In that this condition is very alienating and I haven’t gotten as much support from other people in my life as I would hope for.  I have felt judgement (real or imagined) at our decision to take Gabe off of his potent steroid creams.

I know that ultimately it really doesn’t matter what anyone else thinks.  My husband and I are 100% on the same page.  We feel like God led us to this point.  I know that Gabe will heal and that will be vindication in itself, along with being our greatest hope realized.

In closing I think that so often we feel like if God is with us, the journey would be easier.  We feel like if we are hurting and exhausted, God can’t possibly be involved.  But that just isn’t the case.  Just like how he met with the Patriarchs in the desert, he meets with us in our “desert”.

“I will make rivers flow on barren heights, and springs within the valleys. I will turn the desert into pools of water, and the parched ground into springs.” Isaiah 41:81

“Lord, help us to find your streams of life-giving waters in whatever barren wilderness we find ourselves in.  Help us to rise above our circumstances as we keep our eyes on you.  Do a work in our hearts as we submit the brokenness of our situations to you.  Help us to know that you are the prize we seek and that we have eternal value as your workmanship in Christ Jesus.  Amen”

 

 

 

 

 

 

Carrot Seed Oil

If you know me, you know I am always trying new things out in the health and beauty department.  I have an entire cupboard dedicated to supplements.  My husband can attest to that, much to his chagrin.

There are some things I love, and use over and over (hello turmeric)…and other things that get relegated to the back of the cupboard never to see the light of day again (fermented cod liver, hella gross).

Beauty and health are completely linked in my mind.

When my skin is looking dull, I don’t go to Macy’s beauty counter and buy expensive creams.  I play around with my own concoctions.  I’ve seen different companies putting out products with essential oils however they also have fillers, preservatives, extra fragrances, and they are expensive.  I’m frugal, people (cheap, I’m cheap, ok…)

One product that has really impressed me lately had been carrot seed essential oil.  I bought this from plant therapy for $11.

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My wonder oil, y’all

It’ll last me a year, at least. I mixed it with purified water in a mister, roughly 4 ounces water with 20 drops oil.  I shake it up and mist it onto my clean skin.

Carrot seed oil is amazing for skin health.  It is regenerative and may have up to 30 SPF.  I won’t go into all the benefits but you can read a bit more here https://www.organicfacts.net/health-benefits/essential-oils/carrot-seed-essential-oil.html

I really did see results overnight with my problematic skin.

I have oily skin prone to redness and blotchiness.  I usually don’t feel confident leaving the house without foundation and a full face of makeup.  The carrot seed oil really helps make my complexion look so much better that I’ve been skipping makeup (save for mascara and filling in my super light eyebrows so people can read my facial expressions!) which is something I wouldn’t have done a couple weeks ago.

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My Makeup-free my, you’re welcome…

Which was the goal because I don’t like having to put it on and clogging my pores.  Plus it shaves ten minutes off my routine, which is a huge plus.  Also, I’m putting zero potentially harmful chemicals on my face.  Happy dance!

I’m nearly 31 and I don’t have wrinkles yet but I could see how this oil could help with that as well.  I wouldn’t swear by it’s abilities as a natural sunblock but I’ve ventured out into the blazing sun a couple times wearing carrot seed and only carrot seed (hahahaha) and no sunburn or even tanning happened.

This is a natural product and has a natural smell.  I like it, personally.  But it’s a strong smell and you may or may not be able to tolerate it.  You could also mix it with rose or lavender oil to make it more pleasant, and with extra skin health benefits!!

Huge Setback

Warning: this blog contains graphic medical photos….

Gabe was doing pretty good.  The liviaone probiotic spray was really helping to clear up his skin.  He was still very much still going through TSW (topical steroid withdrawal) but still able to get out and enjoy life in a limited capacity. 20170630_133401

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This is his feet, looking AMAZING compared to how they had looked just a week or so prior.

 

Then last Monday he started not feeling well.  Very tired, very irritable.  By Tuesday he was getting a bumpy rash and was feverish.  We assumed it was a staph infection.  When it didn’t respond to our treatment at home, my husband took him in to the emergency room.  We got a quick staph diagnosis and antibiotics and went home. 20170704_194659

He was way too sick to go anywhere for fireworks on Tuesday.

Sometime mid Wednesday we realized that he wasn’t responding to the antibiotics.  The rash of little red bumps had spread all over his body.

My Mom came over and suggested it might by measles, which I quickly dismissed.  Later I realized I knew very little about measles so I do some quick googling.  I realized that Gabe’s rash looked very similar to the typical measles rash.

20170705_114604He also had the other symptoms of headache, sore throat and tongue, fever, etc…

We brought him in to urgent care Wednesday night. The took swabs and samples and said we would know by Friday if it were measles or not.

By Friday, Gabe was still in rough shape.  The measles plus his underlying TSW made for a hellish week for everyone.  Gabe’s skin was literally peeling off.  A thick layer of dead skin would come right off to reveal still-too raw red skin underneath.  You can see this on his feet…

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This obviously involved a lot of pain for him- on top of the other symptoms of measles and his TSW flaring.

Yesterday I brought him in to see a pediatricion to get him something stronger for his pain.  Ibuprofen wasn’t cutting it.  When I got to the clinic the ladies at the front desk all made knowing eye with contact with each other and backed away from the desk.  Great, Gabe is the “measles kid” and everyone at the clinic has been talking about it.  He had a mask on and they were well over 15 feet away but the reacted as though I had just rolled up with a zombie-leper in that little child sized wheelchair.

We got Gabe some tramadol and vitamin A.  But at this point we still don’t have answers.  None of the four doctors who have seen him this week have ever seen measles before.  The state health department has taken over his samples and testing so that is delaying getting our answers until Monday or even Tuesday.

How did Gabe get the measles?  We don’t know for sure yet (we don’t even know 100% if it IS measles…) but just a few days prior to all this I had read about documented cases of people getting sick after coming in contact with someone who had recently been vaccinated with a live virus.  Gabe had been around a young child who just got her MMR shot in the days leading up to his illness.  It’s very possible that the child was shedding the measles virus and Gabe was susceptible due to his weakened state.

The Doctor told me that they will be able to tell if his strain of measles is wild or cultivated.  Basically if he got it through vaccine-shedding or by a random encounter with measles. 20170708_082751How has he been handling this?  Not well.  It was a huge setback, not just physically but psychologically.  For a little boy who’s been through so much.  This was just too much.  Several times, when the pain was really bad, he talked about just wanting to die so he didn’t have to be suffering anymore.

As a parent there just isn’t much worse.

We are holding to our faith and the power of prayer.  We tell Gabe continuously that he is going to get better.  There is a light at the end of the tunnel.  That God loves him and is going to cause all this suffering to work for his good.

He’s still very much in the thick of it so if you could take a moment and pray for his complete healing, that would mean so much to us.

Thank you.