Gluten and Eczema

Awhile back I started my three kids on a gluten free diet.  For two main reasons- my 23 and Me test showed that my celiac disease is definitely genetic.  Plus, two of my kids struggle with A.D.D. issues and the other has horrible eczema/TSW.  There is a very strong link between gluten sensitivity and both conditions.

There was a lot of complaining for sure!  Especially my eldest, who said he’d rather deal with potential effects of eating gluten than cut out his favorite foods.  He’s slowly coming around.  He’s big on science and I took time to explain how gluten causes inflammation in virtually everyone, but that some people are genetically more susceptible.  Because celiac runs in our family, that would definitely include him.  Plus the gluten free offerings have gotten so much better and varied in the last few years.  When I first went gluten free the gluten free pasta was disgusting.  Now there are brands so good you can hardly tell or miss the gluten!

I definitely got part of my answer when I let my kids “cheat” about 10 days ago.  My middle son, Gabe, had a huge piece of pizza and some regular cookies.  The next day almost his entire body was covered in a rash that lasted for four days.

I’ve noticed my oldest is much more calmer and focused.  Now if I could just find a way to treat surly-teenager-itis!!

I think my youngest is having less meltdowns.  I say I “think” because it’s really hard to measure objectively.  I did notice on Easter, after eating way more sugar than usual, she was crying and emotional all night long.  *sigh*  What you feed your kids really does have a huge impact on emotional and mental (as well as physical, of course) well-being.

Another thing I realized is that when I switched my son’s laundry detergent it lead to a huge backslide in his healing.  I didn’t even think much of it at the time.  He was getting so much better so when his natural powdered detergent ran out, I just ran out and got some standard free and clear detergent.  He’s been getting worse ever since.  I bought some more of his old detergent and washed all his clothes and bedding.  Hopefully that will help! MSGR_PHOTO_FOR_UPLOAD_1522792350087.jpg_1522792352001

When you’re battling eczema it’s almost always a sign that your immune system is malfunctioning.  It’s not uncommon for you to have random allergic reactions.  A couple days ago I had taken Gabe and his friend to a movie.  We were all having a lot of fun but she playfully rubbed a stuffed bear toy she had gotten from a claw machine on his face.  On the way home his eyes started swelling up.  They turned bright red and rash-ey.  Much Benadryl and a bath later and he was still miserable.  The bear was probably “cheap, china junk” and covered in flame retardants, dust, and formaldehyde.

With eczema it’s not just a skin disorder.  It’s internal before it is ever external.  It’s so important to look after your gut health and avoid inflammatory foods that would make leaky gut worse.  Vitamin D is probably the best single thing to treat eczema and any auto-immune condition.  We take a form that also has vitamin K2 to improve absorbability.  We also use Now brand vitamin D cream on Gabe.  It doesn’t irritate his skin and it helps keeps his levels up.

Fish is also great too.  Because our guy is so little he reacts quickly to food and treatments.  For instance, yesterday he was “crashing” (getting itchy all over and tired) when I gave him some fish oil and he ate some baked tilapia.  He perked right up and had a few more good hours in the day (as opposed to spending the rest of the day immobile).  Our western diets are way too high in inflammatory omega 6 fatty acids.  Think cheap vegetables oils.  We need some omega 6, but it needs to be balanced with omega 3s to keep our inflammatory responses healthy and appropriate.  The standard American diet has 16 times more omega 6’s than omega 3’s.  Omega 6 and Inflammation

To combat his you should throw out all your vegetable oils.  Corn, soy, peanut, canola, rapeseed….it’s all terrible.  Cook with butter, coconut oil, and at low temps with olive oil.  Try to eat fish at least once a week- especially wild-caught salmon, which is great because it is very high in inflammation-crushing omega 3s and it gets it’s pink color from astaxanthin- a potent antioxidant.

Of course fruits and veggies are so important too.  We try to buy organic in bulk, at least for the most heavily sprayed produce.

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to the veggies!

 

Just making these changes, and taking our son off of all steroids, eliminated his asthma/chronic pneumonia.  He still has a way to go but we aren’t going to quit until he is 100% healed!

 

 

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Huge Setback

Warning: this blog contains graphic medical photos….

Gabe was doing pretty good.  The liviaone probiotic spray was really helping to clear up his skin.  He was still very much still going through TSW (topical steroid withdrawal) but still able to get out and enjoy life in a limited capacity. 20170630_133401

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This is his feet, looking AMAZING compared to how they had looked just a week or so prior.

 

Then last Monday he started not feeling well.  Very tired, very irritable.  By Tuesday he was getting a bumpy rash and was feverish.  We assumed it was a staph infection.  When it didn’t respond to our treatment at home, my husband took him in to the emergency room.  We got a quick staph diagnosis and antibiotics and went home. 20170704_194659

He was way too sick to go anywhere for fireworks on Tuesday.

Sometime mid Wednesday we realized that he wasn’t responding to the antibiotics.  The rash of little red bumps had spread all over his body.

My Mom came over and suggested it might by measles, which I quickly dismissed.  Later I realized I knew very little about measles so I do some quick googling.  I realized that Gabe’s rash looked very similar to the typical measles rash.

20170705_114604He also had the other symptoms of headache, sore throat and tongue, fever, etc…

We brought him in to urgent care Wednesday night. The took swabs and samples and said we would know by Friday if it were measles or not.

By Friday, Gabe was still in rough shape.  The measles plus his underlying TSW made for a hellish week for everyone.  Gabe’s skin was literally peeling off.  A thick layer of dead skin would come right off to reveal still-too raw red skin underneath.  You can see this on his feet…

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This obviously involved a lot of pain for him- on top of the other symptoms of measles and his TSW flaring.

Yesterday I brought him in to see a pediatricion to get him something stronger for his pain.  Ibuprofen wasn’t cutting it.  When I got to the clinic the ladies at the front desk all made knowing eye with contact with each other and backed away from the desk.  Great, Gabe is the “measles kid” and everyone at the clinic has been talking about it.  He had a mask on and they were well over 15 feet away but the reacted as though I had just rolled up with a zombie-leper in that little child sized wheelchair.

We got Gabe some tramadol and vitamin A.  But at this point we still don’t have answers.  None of the four doctors who have seen him this week have ever seen measles before.  The state health department has taken over his samples and testing so that is delaying getting our answers until Monday or even Tuesday.

How did Gabe get the measles?  We don’t know for sure yet (we don’t even know 100% if it IS measles…) but just a few days prior to all this I had read about documented cases of people getting sick after coming in contact with someone who had recently been vaccinated with a live virus.  Gabe had been around a young child who just got her MMR shot in the days leading up to his illness.  It’s very possible that the child was shedding the measles virus and Gabe was susceptible due to his weakened state.

The Doctor told me that they will be able to tell if his strain of measles is wild or cultivated.  Basically if he got it through vaccine-shedding or by a random encounter with measles. 20170708_082751How has he been handling this?  Not well.  It was a huge setback, not just physically but psychologically.  For a little boy who’s been through so much.  This was just too much.  Several times, when the pain was really bad, he talked about just wanting to die so he didn’t have to be suffering anymore.

As a parent there just isn’t much worse.

We are holding to our faith and the power of prayer.  We tell Gabe continuously that he is going to get better.  There is a light at the end of the tunnel.  That God loves him and is going to cause all this suffering to work for his good.

He’s still very much in the thick of it so if you could take a moment and pray for his complete healing, that would mean so much to us.

Thank you.