I just got kicked out of an eczema support group on Facebook.
I was acting as sort of an awareness raising vigilante for the dangers and prevalence of topical steroid addiction amongst those who suffer with eczema.
Like, “LOOK! Guys I have the answer. You can get completely better!! Your steroids have been causing your worsening condition all along. Now you just need to go through this hellish withdrawal!!”
Obviously I wasn’t met with much enthusiasm. The people who administrate the group are familiar with TSW and for whatever reason, have decided against it. Not only that, but because of the suffering associated with it, they label it as “dangerous” and “misguided” and the people, like myself, who try to sound the alarm, are promptly booted from the group.
My reasons for wanting to warn people is simply that I wish someone had warned us before our level of dependence on steroids got as bad as it did. We could have avoided so much pain and suffering for our son.
But the road is a hard one, no doubt. And many try for a time, before going back to steroids and concluding that TSW doesn’t work.
I’ve gotten some unexpected feedback sharing my blog within my TSW support group. People commending my husband and I for doing a good job. It is great, in a sense, mostly because it’s vindication. When we entered into this, it was going against medical advice. It was going it alone. It was entering into some pretty bleak and abject suffering. We felt very defensive about our decision because while we knew we were doing the right thing, we felt a lot of heat over it.
But at this point it is finally paying off. My son is getting better. There is a spark of vitality and health that strengthens every single day.
In our case we found the answer to our prayers, to our searching, but it meant pressing through a whole lot of pain and difficulty. “As the time approached for him to be taken up to heaven, Jesus resolutely set out for Jerusalem.” Luke 9:51 Another version says, “He set his face like flint.” Jesus knew full well what he was getting into and he pressed into it. He was resolute. Because he knew the joy set before him. He knew the end game.
My husband and I never wavered, not once. We knew that God had led us to this point. We knew Gabe had to go through this withdrawal. We were of one mind, and there is so much power in that. Gabe, young as he is, he understood and was 100% on board too.
We’ve gone through a pretty extreme trial, but, we all go through stuff. We all deal with pain. That’s why we need hope. We need to know the end game. We need to know our Shepherd.
Often, the only way out is through. We have to be resolute.
“Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off every encumbrance and the sin that so easily entangles, and let us run with endurance the race set out for us.
Let us fix our eyes on Jesus, the pioneer and perfecter of our faith, who for the joy set before Him endured the cross, scorning its shame, and sat down at the right hand of the throne of God.” Hebrews 12:2-3
I know there are those who don’t get their healing. At least, not here on this earth. But we know the end game. We know in whom we have believed. We know this life isn’t the “be all, end all”. It’s like a cosmic waiting room we bide our time in until we can get to the real deal. And hardships help to wake us up to the eternal consequences and weightiness of how we live our lives here while we wait “for the children of God to be revealed