I ended up deleting my past 4 posts for a couple reasons. My husband didn’t like that I was putting Gabe’s suffering out there for the World to see and also that we want to be able to do what’s best for Gabe without fear of outside forces *ahem* meddling.
My husband and I process things very differently. He is very stoic and private. I’m an open book and sharing (with as many people as possible) makes me feel better. But I respect his wishes and I see his point. We will probably share more when Gabe is well along his healing journey. We do want to raise awareness.
But still, there is good news and darn it, I want to share! Gabe is doing a lot better than he was last week. A lot of the more frightening symptoms have subsided. His skin doesn’t look nearly as red. He still has a lot of healing ahead of him, but we are so encouraged.
His actual eczema is almost non-existent. I still believe God touched him and healed his eczema. We saw enough of an improvement that we were prompted to get him off the steroids- the medicine that was poisoning his body. Now we just need to go through the withdrawals.
Like so often, healing is a journey. It’s a path. There are good days and bad days, ups and downs. But you discover so much along the way. The journey itself becomes sacred in it’s own way.
We have also found an online community of people on this same journey. There is a lot of encouragement and help to be found.
I do believe that God is blessing Gabe with a quick healing. Some things I am doing to help are…
-twice daily soaks in the tub. Sometimes up to an hour. We toss in Epsom salt and essential oils or olive oil and fresh garlic. After twenty minutes or so his pores really open up and I think he has been able to do a lot of detoxing that way. The steroids cause the skin to constrict, and he was on them for so long his skin hasn’t properly detoxed in ages. TMI alert- the bath water takes on the characteristic icky ooze smell so associated with TSW after awhile. It gets pretty gross. I theorize that it’s toxins and trapped sebum in the water.
We’ve also been using a zinc oxide (diaper rash cream) on his really bad spots. For the rest of his body it is Egyptian magic, coconut oil, silver cream, and a drop or two of clove or lavender oil.
He is on antibiotics because he had gotten ‘staphy’ on his arms and torso last week. That looks a lot better and we hope this is the only time he’ll need them.
We met with a new dermatologist today. She was very understanding and admitted she thought Gabe did have a problem related to the steroids, though she stopped just shy of labeling it as “RSS”. She was very supportive of us treating him without steroids. She wrote us a couple perscriptions that may come in handy.
Gabe is handling this all really well. He has been such a trooper. We explained to him what was happening and why, and he has been so brave in handling a process that is very painful and difficult.